HELLO!How have you been? Okay, retarted. *smelling hands that smell of marsh fur-shampoo*
Hi, I noe i am suppose to start school today. Yes, I was happy and overjoyed but who knew, up to the last minute, my heart just didn't felt right. It wasn't the right time , it was like afraid, afraid that I will be stared, afraid that I would be left out, afraid that it wouldn't be the same, no not anymore. Not everyone has a bald head? Not everyone wears hats? Not everyone getsto miss school? Maybe it is because that I haen't finish my work? Maybe because I haven't started my literature reading. Who knows? Even I don't!
Hey all! Woke up early coz got form teacher Mr Lee coming to my house for those visits. Like always, my mum must go andbuy drinks and fruits and put all in a nice platter but no one eats, even the gay-air-con man also reject but so gayishly! He's like a GAY!! He was asking me:"Eh, you play drum, play for me to hear la'!! Ouch!! Decided, we are going to drive up again for my last trip, going to Cameron Highlands. Never been there before , anyone? Hmmm, gess not. Won't blog for the next couple of days coz busy okay? I think they are going to move my bed over already and I think that Eileen friends are going to Mcdonalds to do their art! Wierd but true? Okay, got to go! Bye!
Howdy people, not much today just a few new things.Woke up late and the chinese tuition teacher also came late so well, just right. Went for lunch with mum at J8 cafe cartel then when all the way up and walk our way down. We scared not enough time so I changed my drum lesson to 3.30. Went to food court to takeaway rice for IYSA then browse then went to buy pen at poplar! Yah! I finally have my purple pen!Also the refill but then this refill spoil one, so stupid. Mum brought me to Seiyu and she bought me this new bag, got discount so ya, is DEUTER!!! I chose this orange, black yellow one , smaller than my now bag, she say she don't mind buying coz got better support. Also bought another for a friend's birthday! Altogether $93.80 after discount 30% both. She also use all her voucher and in the end pay only $13.80. Cool eh? Had drum lesson, never toch drums but watch a video , damn cool! He gave me a fre metronome, electric, old one coz he boght a new one at $200 plus. Expensive!! Like gameboy like that, then slept until 9pm and eat dinner then goin sleep again. Goodnight! Visit the website below and hear the radio everyday! I am telling you, you better! Ha!
Hey! Long time no post. I posted some of the pictures of Eileen and her class and her friend wearing the shimmery thingy. Heard it was rented, but so shimmery. ITALY won World Cup, srry, I slept after half-time. Yesturday slept the whole day and ya, the Make-a-wish ppl came and i did as I must, I wished for a FROG! with the tnk and stuff , i think. They gave me a sasha bear when they cam too. Eileen's mum came back for a short time and bought me 4 stuff toys! They are Boobo, Diapers, Piggy Jr. and Toffee. Cool names heh... took me long time to think you know. Yesturday I had a wierd dream that I was champion at Daytona! You know, the racing arcade game, maybe will play Age of Empires at night with Tim, he suggested it. Came back at 11 today, 11am! His school very cool, alot of holidays, this is after his exam can return home. Tomorrow his last paperI think is physics. Must go do h/w no, bye!
Hey! Promise your pictures of Eileen at her maranthon...
HELLO! Just came back from hospital FBC! Mum gave muffins to the people. I got my stationery from Duyi and a deck of Spongebob Squarepants Playing Cards for Tricia. Blood count till okay but not allowed to go out for the next week. Just played some Spongebob Squarepants movie xbox game, xian liao! Oh Ya! I just change my desktop from eggs back to Marsh!!My brother is going to some place to hand in his thing for some award, the sent back to hhim coz he forgot write finish, he almost thought he failed! Think he just left! So football- Italy VS France! I watched the match of Portugal and France, then realise the goal was penalty kick, what the!! Missed Drums today, will practise tomorrow, too tired to go up there, ah ya, so feel like swimming, I WANT To SWIM!! yesturday, i dreamt that I was swimming in this tube ride with dolphins one! Ha! Better Go! *AHAHH the High School Musical Songs are stuck in my head* and...you know my brother, he say he hear a song yestrday then the hip hop got to his head when he having exam then he like....HAHAHAHA!
Hey all, past few days have been wierd. Oh, forgot to tell you guys, Sat was my Bro's BDAY!!! and... today is my dad's BDAY!!! We are going to have steamboat and the metal gate guy is coming today to fix it in at 2.30. YAYAYAY! Have chinese tuitiom at 6pm, hate late night tuition! okay, have been sleeping for the last 2 days, not feeling myself, now much much better. Got mosquito bite on my head! WAHH! Went for seafood on Sunday, the seafood was okay, okay la, not that great. My brother , eileen and me all want a tamagotchi! never mind, forgot i told you. *You know eileen can hog the computer for hours, hours and more hours, I needed to use and!!*okay, got to go, stomach ache ! bye!
YAHOO YEH! Houdy, just watched Garfield 2 in cinemas, ate a whole box of popcorn. The movie is soooo nice, so funny, I laugh like crazy. Just had a chat with tricia, told her about the dog license thing.
In 2003, discovered a growth in pitituary gland that caused diabetes insipidus(DI).
growth was stable and ate drugs to replace the hormone(DI)
In end 2005, growth grew in size abruptly to cause multiple hormone defiency:
tyroid stimulating hormone, hormone to control stress, hormone for absorbtion of water(DI), sex hormone, growth hormone
Ate all other 3 replacements except sex and growth hormones.
In 2006, decided do operation since growth reaching optic nerves and too dangerous(don't want take such risks)
tried everything like steriods but to no avail
On 16 jan 2006, had operation to remove some to clear danger in mount elizabeth by Ho Kee Hang
Biopsy states that is germinoma tumor( germ cell tumor), cancerous
Through 2006, completed chemotherapy and radiotherapy.
Chemotherapy= 4 cycles of 1 wk drug, 3 wk rest
Radiotherapy= 5 weeks daily radiation
2007, happy and starting school! But still under life-long hormone replacment
In 2006, I went for a surgery to remove a growth from my brain. After recovery, I experienced chemotherapy which made me weak, tired and caused my immunity to drop. I also had radiotherapy that will eventually lead to side effects which may affect my life in the future. Since then, I have lost my stamina and my strength. My immunity is low and I am capable of contracting sicknesses and viruses more easily than others. Due to my multiple hormone defiency, I have to live being short for my age until I receive treatment which will only be sometime soon. Not just that, but I must be on tablet medication for life.
All these have affected my life so much. I cannot do things which I could do earlier before. I used to be able to run fast, now I cannot even go up the stairs. I used to be able to swim multiple laps in the pool, now I can only do a few with muscle pains at the end. My stature has affected me greatly too. It is common to hear people calling me ‘primary three’ or ‘little girl’. I feel insulted all the times even though I knew it was not on purpose. Shortness has led to many disadvantages, too numerous for me to recount.
With all these problems in my life, excluding additional ones from time to time, I feel that I do not want to live such a life, with sickness and disease. With people that do not understand and give rude comments that I take to heart. I just wish that I can be like others, normal and healthy. I will be able to run, skip, jog, interact, swim and many more without fear and difficulty. I can go out without negative comments from anyone and without the ‘primary three’ talk, but instead the ‘secondary two’ talk, a talk I have never heard anywhere else, except in school.
Now, I hope you know how I feel, the pain and difficulty I experience in my life, the ignorance and fear I receive. Now you know why I dream such a dream- a dream of being able to become a healthy, unsickly person. I know that if I do my best and take care of myself, this dream will come true. But with your help, I am more encouraged to fight on. So, I hope you will want to help me achieve this dream, a dream that seems easy and pointless to you but difficult and meaningful to me.